Pastor Scott Summer
Student & Young Adult Pastor, Shiloh Community Church
Since my baby girl Quinn was born, Pastor Kevin has often called her “Quinn the
Eskimo.” For those who don’t listen to Bob Dylan, this is a reference to his song
“Quinn the Eskimo (The Mighty Quinn).” While the song is probably alluding to
some kind of drug use, I choose to hope that it’s talking about a person who comes
in and rescues people from their misery. The song’s hook is “Come all without, come
all within, you’ll not see nothing like the mighty Quinn.” At the very least, this is
talking about a person who draws other people in, and who is known for being
extraordinary and mighty. Now those are traits I’d love to be associated with my
To give some background on our family, we have two boys, Owen (4) and Max (2),
and our daughter Quinn (1). Before Quinn came Brooke really wanted a girl (I
secretly did as well). I would jokingly tell her that we might have a starting football
offence before getting a girl, as the male-to- female ratio in my family was 11 boys: 1
girl, starting with my grandfather on my dad’s side. Clearly God had other plans.
When Quinn was born she was perfect and beautiful. She slept well early on and has
been such a good baby (which we needed after having Max…that kid practically had
24 hour colic until he was 3 months old). With Quinn our family became complete,
and everything was going well.
After Quinn was a few months old, however, Brooke started to notice some things.
She still would get cross-eyed frequently (which she was supposed to grow out of at
1 month old), she wouldn’t put weight on her legs if you held her up, she was still
floppy like a newborn and wasn’t holding her head up, and overall she wasn’t
meeting her developmental milestones. Brooke tends to be a bit of a worrier, so I
tried to balance her out by telling her that everything was fine, that Quinn was just
taking her time (Owen was a late crawler and walker after all), and that she would
catch up. She said I was in denial that something was wrong. I told her she was
being too anxious. Meanwhile Quinn continued to fall behind in her development.
In spite of my lack of action, Brooke thankfully called to get Quinn tested to
potentially qualify for therapy, which she did end up qualifying for. The therapist
recommended that we go to a various doctors to see what might be wrong, and as of
right now the diagnosis is hypotonia (which simply means low muscle tone) and
Strabismus (an eye condition). We’re scheduled for an MRI this month to hopefully
get more answers, as well as an eye surgery next month to correct her Strabismus.
In spite of all this, Quinn remains a happy little girl with the cutest roar of a laugh, a
love for Ed Sheeran and Justin Bieber songs, and a big cuddle for daddy whenever I
If any of you have had similar experiences with your own kids, you probably know
the questions I occasionally think about: Will Quinn lead a normal life? Will she be
able to play and make friends? Will she get married? Will I be able to walk her
down the isle and dance with her? Will she be able to experience being a mom?
These are things that I can’t know right now, so I have to give them to God and trust
that He has a plan. Regardless of the answers to these questions, my prayer
continues to be that she be mighty in the Lord, and that she be a leader and an
influencer who draws people to Him. I also pray that she never sees her situation in
life through the eyes of a victim but through the eyes of a unique daughter of the
King. It is from this perspective that she will find joy in her maker, knowing she was
created exactly as she is to fulfill the good works that He has already prepared just
for her to walk in. If she does all that I guarantee that you’ll not see nothing like the
I share all of this partly because we haven’t talked much about this with anyone
outside of the church staff, and I think it’s important that Brooke and I let our church
family in on our struggle so you can be joining us in lifting our baby girl up in prayer.
I also share this to lead by example and encourage any of you who may be quietly
facing difficulties on your own to trust God and your Shiloh family. God calls us to
Himself and to the body of Christ. We are to laugh with, cry with, and love one
another, and it starts with being a bit vulnerable, which is uncomfortable. If you
don’t take my word for it, let me encourage you with this verse:
“Have I not commanded you? Be strong and courageous. Do not be frightened, and do
not be dismayed, for the LORD your God is with you wherever you go.” – Joshua 1:9